(NSFW) TSN's The Butterfly Child, story of a young boy named Jonathan with one of the worlds most rare and painful genetic condi

Fourteen-year-old Jonathan Pitre from Russell, Ontario is an avid hockey fan. He loves his hometown Ottawa Senators and dreamed about playing the game. But he never had the chance. TSN's James Duthie tells Jonathan's painful, and inspiring story. Viewer discretion is advised. Jonathan suffers from Epidermolysis Bullosa (EB), a rare genetic skin condition commonly referred to as “the worst condition you've never heard of“. Jonathan was born with EB, and has spent his entire life in intense pain. Despite h