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AFOs can be used to improve or correct lower limb issues by providing support to the limb, improving alignment, controlling motion, minimizing pain, and correcting or preventing the progression of deformities. This week, we begin the process of getting Mason custom AFOs / Leg Braces! And Jack gets his second Exondys treatment! We end the week with a Camping Trip at Silverwood Theme Park! Disclaimer: This is not medical advice. These videos simply serve as documentation surrounding this treatment and decisions we've made, as parents, to potentially better the lives of our children. ==================== What's Elevidys? Elevidys is a gene therapy from Sarepta. It's the first gene therapy FDA approved for pediatric patients (4-5 years old) with Duchenne muscular dystrophy. Sarepta has also produced Exondys 51. HUGE THANK YOU to Sarepta (Elevidys) and the Seattle Children's Hospital!!! ==================== Hey! If we're meeting for the first time- We are the Bafus family, and we are starting this YouTube channel to give hope, document our journey, and to shine light on duchenne muscular dystrophy. For our first 7 days, we posted one video a day, documenting Mason's $3.2 million, once in a lifetime gene therapy. You can watch that here ➡: ==================== We are typically private people, just like you, but this disease has forced us more into the public, and that's ok. We've learned that this is not a disease that anyone can fight alone. So we decided to take to YouTube to help spread the message and raise awareness of this rare disease. You can follow us here 👇 @BafusFamily?si=D8Weg8DabuLMvpaT #afos #dmd #familyvlog
